Columnist Connie Chandler shares three things in her life with SMA that she thinks someone who might want to spend time with ...

Dallas, keynote speaker Lily Sander discusses belonging, resilience, and the power of community and connection.

This Halloween, an 11-year-old living with SMA named Dash will be trick-or-treating in a custom wheelchair costume inspired ...

The arrival of a new night weekend nurse has given columnist Ari Anderson reason to believe that he's now on the path of ...

In getting ready for the day, columnist Connie Chandler's caregiver helps her look good on the outside, but Connie's attitude ...

Scholar Rock is once again seeking approval in Europe for its muscle-strengthening drug for SMA, already launching in the U.S. as Isembyld.

Muscle regeneration, the benefits of a specialized diet, physiotherapy, and assistive technologies are among top priorities for spinal muscular atrophy (SMA) research identified by patients, ...

For many people living with rare neuromuscular diseases, the most meaningful part of a recent Chicago gathering was not just the medical updates — it was finding a community that understood their ...

There are several treatment options available for spinal muscular atrophy (SMA), a rare genetic condition characterized by progressive muscle weakness and wasting. The disease mainly affects motor ...

Columnist Sherry Toh may be waiting to try Isembyld, but the new SMA treatment should still be made accessible quickly, she ...

New research reveals that the front and back parts of the brain develop independently from completely separate progenitor cells. This discovery helps explain how SMA affects the hindbrain and allows ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google Throughout my life, I’ve experienced a certain kind of loneliness ...