News

Columnist Alliah Czarielle shares how, for her husband, who has hemophilia, finding strength requires acute self-awareness.
Preventive treatment with Pfizer's Hympavzi can reduce bleeding rates in hemophilia A or B patients with inhibitors, new ...
Practice active listening to help ground a person who's anxious about hemophilia concerns. Columnist G Shellye Horowitz tells you how.
Just days after his oldest son was born, columnist Joe MacDonald received astonishing news: Baby Julian had severe hemophilia A.
Teaching children with hemophilia resilience sets them up for emotional health in the long term. Jared Formalejo shares research-backed tips.
Many with hemophilia endure infantilizing by caregivers, most of it unintentional. Columnist Alliah Czarielle describes how to avoid this.
Directly switching from Hemlibra to Mim8 was well tolerated in people with hemophilia A, with or without inhibitors, a study ...
Columnist G Shellye Horowitz struggles to find care for her gastrointestinal issues due to the shortage of medical providers ...
Medical gaslighting is far too common, columnist Jennifer Lynne says. We all deserve to have our symptoms taken seriously.
This piece is part of a series about how caregivers can nurture emotional wellness in their loved ones with hemophilia. Read more here. Our family’s love for live theater is a bond we cherish. We make ...
Columnist Joe MacDonald shares his practical advice for how to help a child define their identity beyond their hemophilia diagnosis.